Adults with SBMA have elevated levels of NfL and GFAP, two biomarkers for nerve damage, in their cerebrospinal fluid, a study ...

As he celebrates SMA Awareness Month, columnist Ari Anderson reflects on his desire to have fun — on day trips as well as ...

Ashley Fox reflects on visibility and SMA, encouraging others to ask questions as a way to educate others about SMA.

Learn the seated adaptive deadlift with Coach Damon V and Anna — a rare move for hamstrings, hips, and core strength.

Columnist Sherry Toh realizes — through dating apps! — just how much she lives a life of privilege even as she's living with ...

Wow, does that resonate! This disability and all the physical and emotional struggles that come with it is not the life, the ...

A decision on apitegromab is due by Sept. 22, with Scholar Rock planning to make it available in the U.S. this year, if it is ...

In honor of SMA Awareness Month, columnist Halsey Blocher is remembering loved ones by trying to live in the same way they did.

The nerve cell-targeting EXG001-307 seems to have a better safety profile than Zolgensma, showing fewer adverse effects on ...

Impressed by the accurate portrayal of emergency rooms on "The Pitt," columnist Sherry Toh hopes to see her own rare disease ...

Columnist Helen Baldwin observes SMA Awareness Month by recalling her son's short life with the disease, as well as all she ...

Due to the progressive nature of spinal muscular atrophy (SMA), a rare genetic disease, an early diagnosis is critical. People with SMA who receive a timely diagnosis can start treatment immediately.